Life with Parkinson’s


 

Imagine not being able to move, sleep, or smile. Feeling anxious or depressed and struggling to think or remember. Your body not feeling like your own. This is what Parkinson's can feel like.

Every hour, two people in the UK are told they have Parkinson's – a brain condition that turns lives upside down, leaving a future full of uncertainty.

I was diagnosed with early onset Parkinson's 3 years ago when I was 43, it currently it makes my right arm shake, impairs my walking in my left leg. I also have trouble sleeping and suffer from ‘low moods’. The toughest part is the knowing that its only going to get worse and that so little is known about the causes.

Currently their no known cure, but I’m hopeful organisation like the Michael J Fox foundation will find one. But hey its not a death sentence, although I could choke, fall down or crash. On the plus side, its made me realise how precious life is and I intend to suck the marrow out of it, or as the French say…

Being a father with PD
Raising kids is tough enough, but with condition its even harder, not having the energy or co-ordination I once had, I’m still worried about how the hell to tell my 7 year old, what it is and if he’s going get it.
So I’ve decided to document it, in the hope that it well help him (and others) understand how best to live with PD

Working with PD
I love working in the rapid changing world of digital,retail and intend to continue for as long as possible. I have of 30 years experience of working with the latest digital technology, I intend to put this knowledge to optimise how I work, utilising the latest digital tools and services. I intend to share my tips and process to help other P.D people keep working and stay connected.

Having P.D and ambition
After living with my condition for three years, I’ve been through all the stages of grief, denial, depression, anger and finally acceptance. I’ve spent days in front of a whiteboard trying to work out my purpose, clarity what my super-powers are and decide how I would like to be remembered.

#dopaminedisco
#designforbetterliving
#scenius
#theopenstudio

 
 

What I want to do before I die

For my son to understand how I seen the world

Be a loving husband, family member and friend

Inspire people to make art and

Encourage the design of useful things

Contribute something meaningful to Parkinson’s research

Be remembered

Do something noble

Become a prolific painter

Help people enjoy their lives more